Family Resources

Everything you need to navigate this journey

Finding the right specialist is step one. These resources help you understand what comes next — from diagnosis to daily care to long-term planning.

Understanding Dementia

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Types of Dementia: A Plain-Language Guide

Alzheimer's, Lewy body, frontotemporal, vascular — what each one means, how they differ, and why the distinction matters for finding the right specialist.

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What to Expect at a First Appointment

A step-by-step walkthrough of what a comprehensive dementia evaluation looks like — cognitive testing, imaging, blood work — and how to prepare.

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Early Warning Signs: When to Seek a Specialist

The difference between normal aging and early cognitive decline. A practical checklist of symptoms that warrant an evaluation.

Navigating the Healthcare System

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How to Get a Referral to a Dementia Specialist

Many insurance plans require a primary care referral. Here's exactly what to say to your GP and how to navigate the process if they're resistant.

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Medicare, Medicaid & Dementia Care: What's Covered

A clear breakdown of what Medicare Parts A, B, and D cover for dementia diagnosis, treatment, and ongoing care.

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20 Questions to Ask a Dementia Specialist

Make the most of every appointment. Covers diagnostic questions, treatment options, clinical trial eligibility, and caregiver resources.

Caregiver Support

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Caregiver Burnout: Recognizing It and Getting Help

Signs of caregiver burnout, how to find respite care, and national resources specifically for dementia caregivers.

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Home Safety for Dementia Patients: A Room-by-Room Guide

Practical modifications to reduce fall risk, wandering, and household accidents for someone living with dementia at home.

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Finding a Local Support Group

A guide to finding Alzheimer's Association chapters, online support communities, and disease-specific groups near you.

Planning Ahead

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Legal Documents Every Dementia Family Needs

Power of attorney, healthcare proxy, living will, POLST — what each document does and why the conversation needs to happen sooner than most families think.

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Memory Care Facilities: How to Evaluate and Choose

What to look for in a memory care unit — staffing ratios, safety features, activity programming, and the questions to ask on a tour.

All resources are reviewed by Sarah C., our Chief Medical Advisor and geriatric social worker with 15 years of dementia care experience. To suggest a topic, email hello@dementia-care.org.